Parkinson’s Disease and Vision: Navigating Common Visual Problems

As we grow older, it is normal to experience age-related eye problems. However, research has highlighted that visual symptoms are prevalent among individuals living with Parkinson’s Disease (PD). These issues often stem from alterations in the front part of the eye causing dryness, changes in the retina (responsible for sensing light), or changes in eye coordination.

People with Parkinson’s may experience various visual symptoms, including blurry vision, difficulty with color perception, processing visual information, dry eye, double vision, and even hallucinations. These symptoms can be managed with different approaches, including exercises and specialized glasses.

While individual visual symptoms may be mild, their cumulative effect can significantly disrupt daily life. Complications with color vision, contrast sensitivity, or motion perception can affect tasks like reading or walking down the stairs.

Routine eye exams are vital for everyone, even those with perfect eyesight. These evaluations aid in screening for eye diseases and preserving vision. For individuals with PD, these exams are doubly crucial. Vision loss in PD can lead to an increased risk of falls, fractures, mental health issues, and cognitive impairments. The American Academy of Ophthalmology recommends specific frequencies for eye exams based on age and risk factors such as diabetes or family history of eye conditions.

Seeking care from various eye care professionals, such as ophthalmologists, optometrists, or neuro-ophthalmologists, is essential. While routine eye exams are crucial, consulting a neuro-ophthalmologist may be necessary when symptoms persist or remain unexplained.

Conclusion

While age-related eye problems are common, those with Parkinson’s often face additional challenges. Regular eye exams, an understanding of the complexities of vision and PD, and seeking specialized care when needed can significantly improve the quality of life for individuals navigating visual symptoms alongside Parkinson’s Disease. Always consult eye care professionals for personalized guidance and treatments tailored to your unique needs and experiences.

 

For more information visit:

https://www.parkinson.org/understanding-parkinsons/non-movement-symptoms/vision

https://davisphinneyfoundation.org/parkinsons-and-vision/

 

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The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

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2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

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Unleashing the Power of Pickleball for those with Parkinson’s

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Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

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Parkinson’s Disease and Vision: Navigating Common Visual Problems

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2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

Women with Parkinson’s Support Group

Women with Parkinson’s Support Group

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Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

The MIND Diet for Parkinson’s

The MIND Diet for Parkinson’s

Parkinson’s – A Family Affair

Parkinson’s – A Family Affair

Enjoy the Holidays with Parkinson’s

Enjoy the Holidays with Parkinson’s

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Empowering Minds

Empowering Minds: Parkinson’s Mental Wellness for Patients, Caregivers and Families.

The Peterson Foundation for Parkinson’s recently hosted our inaugural Empowering Minds, sponsored by the Hirsch Legacy Fund. This event aimed to shed light on the multifaceted nature of Parkinson’s Disease, moving beyond the commonly known “movement disorder” stereotype and emphasizing its neurological complexity.

Dr. Pontone, a renowned doctor in the field of neurology, provided valuable insights during his presentation, challenging the prevailing perception of Parkinson’s Disease. He highlighted key takeaways that have the potential to change the way we approach this condition.

Early Intervention for Depression and Anxiety:

There is a correlation between depression symptoms and the onset of Parkinson’s Disease long before motor symptoms appear. Early diagnosis and treatment of depression and anxiety can potentially delay or even prevent the development of motor symptoms.

Quality of Life and Depression:

The impact of depression and anxiety have the greatest impact on health for individuals with Parkinson’s Disease even more than movement challenges.  Studies have shown that treating depression is one of the most significant ways to decrease disability and improve quality of life! This underscores the importance of addressing mental health as a crucial aspect of Parkinson’s care.

Physical Exercise and Brain Health:

The best evidence for protecting brain function in Parkinson’s Disease and Alzheimer’s Dementia is aerobic exercise. This emphasizes the importance of incorporating exercise into daily routines.

The MIND Diet:

The MIND Diet is the best nutritional approach for individuals with Parkinson’s Disease. You may wish to refer to the PFP blog on The Mind Diet.

Social Interaction as a Prescription:

Social interaction is an essential part of Parkinson’s Disease management.  Dr. Pontone prescribes this for his patients to encourage them to socialize, connect and get involved.

Importance of Sleep:

Sleep is as important as diet and exercise.  Develop a bedtime routine and try not to take naps during the day. For suggestions to improve your sleep Dr. Pontone recommended the book Why We Sleep by Dr. Walker.

Another esteemed medical expert, Dr. Daniel Claassen from Vanderbilt Medical University shared a study illustrating the positive effects of physical activity, particularly Rock Steady Boxing, on sleep quality. This study involved participants from PFP support groups, highlighting the potential benefits of such programs for Parkinson’s patients.

Lastly, during the event, Dr. Pontone and Dr. Claassen addressed questions on topics like nightmares associated with antidepressants and the demoralizing feelings associated with Parkinson’s Disease, providing valuable insights into these challenging aspects of the condition.

 

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Valentine’s Day and Parkinson’s: Nurturing Relationships

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The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

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Shaping the Future of the Peterson Foundation for Parkinson’s

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Caring for the Caregiver: Recognizing and Addressing Burnout in Parkinson’s Care Partners

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Parkinson’s Disease and Vision: Navigating Common Visual Problems

Empowering Minds

Empowering Minds

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The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

Women with Parkinson’s Support Group

Women with Parkinson’s Support Group

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Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

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The MIND Diet for Parkinson’s

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Parkinson’s – A Family Affair

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Enjoy the Holidays with Parkinson’s

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The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

Parkinson’s disease (PD) is a complex neurodegenerative disorder that affects millions worldwide. However, emerging literature is shedding light on a powerful ally in the battle against PD: strength training. Not only does this form of exercise improve physical strength and endurance, but it also holds the potential to make dopamine utilization more efficient, alleviate symptoms, and potentially slow down the progression of the disease. In this article, we delve into the benefits of strength training specifically tailored for PD, and explore ways to make this journey safe, enjoyable, and transformative.

Understanding the Benefits

The advantages of strength training extend far beyond bulging biceps. Research has shown that individuals diagnosed with PD often experience a decline in gross muscular strength, particularly in areas like the back and hip extensors. This weakness can be attributed to the postural changes that commonly occur as the disease advances. The tendency to hunch shoulders and lean forward weakens postural muscles, compromising balance and increasing the risk of falls.

This is where strength training steps in as a formidable solution. By engaging in regular strength training exercises, individuals with PD can bolster their strength, stability, and confidence. The exercises not only counteract the muscular weakness associated with PD but also promote proper posture, thereby mitigating the risk of falls. Additionally, strength training helps improve dynamic balance and cognitive functioning, contributing to an overall enhanced quality of life.

Unveiling the Science

The science behind the efficacy of strength training for PD is multifaceted. One intriguing aspect is its impact on dopamine metabolism. Dopamine, a neurotransmitter critical for movement control, is often deficient in individuals with PD. Engaging in strength training appears to make dopamine utilization in the brain more efficient, potentially leading to a reduction in motor symptoms.

Moreover, strength training has been associated with anti-inflammatory effects, promoting a healthier neuroenvironment. It also facilitates increased brain connectivity, which can counteract the neural degeneration characteristic of PD. Among various types of exercise, weight training stands out as particularly beneficial for individuals with PD, thanks to its potential to address muscle weakness and posture imbalances.

Embracing a Holistic Approach

While strength training takes center stage, it’s important to recognize that a comprehensive exercise regimen can yield even greater benefits for those with PD. Incorporating a variety of exercises ensures a holistic approach to managing the disease. Resistance training, cycling, aqua aerobics, dance, and specialized programs like Rock Steady Boxing can all play a crucial role in maintaining physical and cognitive well-being.

Embarking on the Journey

For those considering adding strength training to their PD management plan, there are numerous avenues to explore. Personal training, guided by fitness professionals experienced in working with PD patients, offers tailored guidance and supervision. Physical therapy can provide targeted exercises to address specific needs, while group training environments foster camaraderie and motivation.

The key is to start gradually and progress at a pace that suits your individual abilities. Always consult with your healthcare provider before beginning any new exercise regimen, especially if you have existing health conditions.

Conclusion

The realm of exercise, particularly strength training, holds remarkable potential for individuals living with Parkinson’s disease. By actively engaging in regular strength training exercises, individuals can not only increase their physical strength and stability but also potentially enhance dopamine utilization, alleviate symptoms, and slow disease progression. It’s a journey that intertwines science, perseverance, and hope, promising a brighter horizon for those navigating the challenges of Parkinson’s disease.

Resources

Northwestern Medicine: Feinberg School of Medicine

National Library of Medicine

American Academy of Neurology

 

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2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

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Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Parkinson’s Disease and Vision: Navigating Common Visual Problems

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The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

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2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

Women with Parkinson’s Support Group

Women with Parkinson’s Support Group

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

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The MIND Diet for Parkinson’s

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Parkinson’s – A Family Affair

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Enjoy the Holidays with Parkinson’s

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2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

On Saturday, August 12 the Peterson Foundation for Parkinson’s welcomed nearly 150 members of the Middle Tennessee Parkinson’s community at the Gordon Jewish Community Center in Nashville for the Foundation’s 4th Annual Navigating the Parkinson’s Path, presented by Supernus. This day was a true testament to the power of community, bringing together individuals with Parkinson’s, caregivers, advocates, and experts.

The event started with a welcome from Founder, Brent Peterson and Board Member, Jay Lowenthal. They recognized and thanked all the PFP Board members and support group members in attendance. They acknowledged all of our sponsors, of whom without their support this event would not have been possible.

Dr. Jill M. Giordano Farmer began the day by discussing a comprehensive approach to treatment as Parkinson’s progresses. Dr. Farmer stressed that nothing happens in isolation within the brain, making a mixture of medicines essential for a holistic approach. She also highlighted the significance of social engagement and exercise, which impacts both motor and non-motor components of Parkinson’s disease.

In addition to medication, social engagement and exercise, Dr. Farmer stated hydration and proper nutrition is crucial for managing day-to-day symptoms, energy absorption of medications, and reducing constipation.

After a brief Rock Steady Boxing exercise break, facilitated by Colleen Bridges of Bridges for Parkinson’s, Dr. Thomas Davis provided valuable insights into disease modification and the role of alpha-synuclein in Parkinson’s disease. Disease-modifying therapies aim to slow the progression of Parkinson’s, providing hope for better long-term outcomes. Understanding alpha-synuclein and its contribution to the disease has led to new therapies and trials aimed at reducing its impact.

Following Dr. Davis’s presentation, Carrie Friddell from Peterson Voices led the attendees in vocal exercises and provided information on the benefits of vocal health for individuals living with Parkinson’s. At this time, attendees enjoyed some time to mingle with our sponsors and learn about the resources available to the Parkinson’s Community within Middle Tennessee.

The final presenter for the day was Dr. Daniel M. Corcos who shared the incredible benefits of resistance training, particularly its impact on individuals with Parkinson’s. While any form of exercise is beneficial, according to research studies weight training stands out as more advantageous, leading to a 7-point improvement in strength after a 24-month study. Additionally, resistance training enhances cognitive outcomes, preserves brain matter, and improves balance, posture, and gait.

As we continue this journey together, we encourage you to explore the resources shared during the event. Stay informed, engaged, and empowered, every step you take contributes to a better life with Parkinson’s.

Thank you for being part of our event, and we look forward to further sharing valuable insights to support our Parkinson’s community. Let’s navigate this path together, armed with knowledge, support, and a shared commitment to improved living.

RESOURCES FROM EVENT:

Jill Farmer Bio

Dr. Thomas Davis Bio 

Dr. Daniel Corcos Bio

Clinical Research Trials for Parkinsons

Can Exercise Slow Parkinson’s Disease Progression? with Daniel Corcos, PhD

Click here to view pictures from the event on our PFP Facebook Page

Women with Parkinson’s Support Group

Here at PFP we are passionate about providing a safe and nurturing space for individuals affected by Parkinson’s disease, and I would like to extend a warm invitation to you to join our Women’s with Parkinson’s Support Group.

We understand that living with Parkinson’s disease can present unique challenges and experiences for women. By coming together as a community of women facing similar journeys, we can foster an environment of understanding, support, and empowerment. Our support group aims to create a space where women can share their vents, concerns, triumphs, and advice, thus building meaningful connections and finding solace in the company of others who truly understand.

Here are some reasons why our Women’s w/ Parkinson’s Support Group can be an invaluable resource for you:

Tailored Support: The group is specifically designed to address the needs and experiences of women with Parkinson’s disease. We believe that by focusing on the unique aspects of women’s experiences, we can provide more targeted support and guidance.

Emotional Connection: Sharing your vents and concerns in a safe and empathetic environment can be immensely therapeutic. Our group provides a compassionate space where you can openly express your feelings and be met with understanding and encouragement.

Empowerment and Education: We regularly organize informative sessions and guest speaker events where we explore topics related to Parkinson’s disease management, research updates, and lifestyle strategies. These sessions are an opportunity to expand your knowledge, gain valuable insights, and feel empowered to take control of your Parkinson’s journey.

Building connections with others who are walking a similar path can be profoundly impactful. Our support group offers the chance to forge meaningful friendships, share advice, and create a strong network of support that extends beyond our meetings.

We warmly encourage you to attend our upcoming support group meeting via zoom on Thursday, July 20 at 10:00am. If you have any concerns or questions beforehand, please don’t hesitate to reach out to us via email or phone, which I will provide at the end of this message.

 

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Eating Right with Parkinson’s: Nutrition Month Tips

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The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

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Parkinson’s Disease and Vision: Navigating Common Visual Problems

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Empowering Minds

Empowering Minds

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

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2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

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Women with Parkinson’s Support Group

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Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

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The MIND Diet for Parkinson’s

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Parkinson’s – A Family Affair

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Enjoy the Holidays with Parkinson’s

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Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

Living with Parkinson’s disease can be challenging, but making healthy dietary choices can have a positive impact on managing symptoms and improving overall well-being. In this blog post, we will explore some of the best fruits and vegetables that can be beneficial for individuals living with Parkinson’s disease.

A nutritious diet plays a crucial role in supporting brain health and potentially slowing down the progression of Parkinson’s disease. Here are three categories of fruits and vegetables that stand out for their potential benefits:

Berries:

When it comes to fruits, blueberries are particularly beneficial for individuals with Parkinson’s. These small, antioxidant-rich berries offer a host of advantages.

Blueberries are packed with anthocyanins, which are potent antioxidants known to reduce inflammation and oxidative stress in the brain. Parkinson’s disease involves the loss of dopamine-producing cells in the brain, leading to motor symptoms. The antioxidants in blueberries help protect these cells and potentially slow down the progression of the disease.

Furthermore, blueberries are rich in vitamins C and K, as well as fiber. These nutrients support the immune system, promote healthy digestion, and aid in maintaining cognitive function. Including a handful of blueberries in your daily diet can be a delightful and healthful way to support your journey with Parkinson’s.

Greens:

Leafy greens such as spinach, kale, and Swiss chard are nutritional powerhouses that offer numerous benefits for individuals living with Parkinson’s disease. These vibrant greens are loaded with essential vitamins, minerals, and antioxidants that support brain health and overall well-being.

One key nutrient found in leafy greens is folate, a B-vitamin that helps maintain healthy brain function. Folate plays a vital role in the production of neurotransmitters, including dopamine, which is significantly depleted in Parkinson’s disease. By incorporating leafy greens into your meals, you can help support dopamine production and potentially alleviate some symptoms.

Additionally, leafy greens are excellent sources of antioxidants, including vitamin C and beta-carotene. These antioxidants help combat oxidative stress, which is believed to contribute to the progression of Parkinson’s. Including a variety of leafy greens in your diet can contribute to a well-rounded and nourishing approach to managing the disease.

Citrus:

Citrus fruits like oranges, grapefruits, and lemons not only add a burst of flavor to your meals but also provide valuable benefits for individuals living with Parkinson’s disease. These brightly colored fruits are renowned for their high vitamin C content and other beneficial compounds.

Vitamin C is a potent antioxidant that plays a crucial role in protecting brain cells from oxidative damage. It also aids in the absorption of iron, an important mineral that supports cognitive function. In Parkinson’s disease, oxidative stress and inflammation are known to contribute to the degeneration of dopamine-producing cells. Consuming citrus fruits regularly can help combat these detrimental effects.

Moreover, citrus fruits contain flavonoids, which are natural compounds known for their anti-inflammatory and neuroprotective properties. These compounds have been associated with a reduced risk of developing Parkinson’s disease and may help slow down its progression.

By incorporating a variety of citrus fruits into your diet, you can enjoy their refreshing flavors while supporting your brain health and overall well-being.

Maintaining a healthy diet is essential for individuals living with Parkinson’s disease. By incorporating fruits and vegetables like blueberries, leafy greens, and citrus fruits into your meals, you can provide your body with valuable antioxidants, vitamins, and minerals. These nutrient powerhouses have the potential to protect brain cells, support dopamine production, reduce inflammation, and enhance overall well-being. Remember to consult with a healthcare professional or registered dietitian to create a personalized diet plan that best suits your specific needs and medical condition.

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Valentine’s Day and Parkinson’s: Nurturing Relationships

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The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

Shaping the Future of the Peterson Foundation for Parkinson’s

Shaping the Future of the Peterson Foundation for Parkinson’s

Caring for the Caregiver: Recognizing and Addressing Burnout in Parkinson’s Care Partners

Caring for the Caregiver: Recognizing and Addressing Burnout in Parkinson’s Care Partners

2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

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Understanding and Managing Cognitive Health in Parkinson’s Disease

Unleashing the Power of Pickleball for those with Parkinson’s

Unleashing the Power of Pickleball for those with Parkinson’s

Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Empowering Minds

Empowering Minds

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

Women with Parkinson’s Support Group

Women with Parkinson’s Support Group

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

The MIND Diet for Parkinson’s

The MIND Diet for Parkinson’s

Parkinson’s – A Family Affair

Parkinson’s – A Family Affair

Enjoy the Holidays with Parkinson’s

Enjoy the Holidays with Parkinson’s

10 Tips for Care Partners

 

 

The MIND Diet for Parkinson’s

Article Written By: Sarah Rink, MS,RD,LDN

As People with Parkinson’s and their Care Partners know, consistency and routine are key, and diet is no different. In this article we will look at the MIND diet and how it can benefit everyone, including People with Parkinson’s, with improved brain health.

The MIND Diet is the acronym for Mediterranean-DASH Intervention for Neurodegenerative Delay Diet. This diet has been shown to decrease inflammation in the brain including within the neurons and has slowed down brain aging by 7.5 years! The best results are seen with consistently following the guidelines over years with a 54% lower risk of decline, but it is never too late to implement these into your daily meals. Study participants with partial adherence still showed a 35% benefit! The MIND diet has been shown to lower rates of development of Parkinson’s, Alzheimer’s, and other dementias, and slowing the progression of signs in both of these conditions.

MIND DIET Guidelines:

Vegetables

Vegetables help reduce inflammation, provides fiber, and wide array of vitamins & minerals

  • At least one serving of dark green leafy vegetables per day (one serving = 1 cup raw or 1/2 cup cooked)
    • Examples: Spinach, kale, collard, romaine
  • At least one other vegetable of ½ cup per day

Fruits & Berries

Focus on berries due to high levels of flavonoids which are antioxidants

  • At least 3 – 5 ½ cup servings per week
    • Examples: Blueberries, strawberries, raspberries, blackberries (fresh or frozen in off season months)

Beans & Legumes

Good source of fiber & protein (remember these sources of protein will still affect uptake of carbidopa levodopa)

  • 3 servings of ½ cup per week
    • Examples: Chickpeas, lentils, hummus

Nuts/Seeds

Provide a good source of Vitamin E, protein, and healthy fats

  • 5 servings of 1 oz per week
    • Nuts/nut butter
  • Walnuts (a good source of Omega-3 and Magnesium)

Whole Grains

Provide fiber and various vitamins and minerals

  • 3 servings per day (one serving = 1/2 cup grain or 1 slice of bread)
    • Oatmeal, brown/wild rice, quinoa

Fish

Provides a good source of Omega-3 and protein

  • One serving per week (3-5 oz)
    • Salmon, tuna, cod (not fried)

Poultry

  • > 2 servings per week (3-5 oz)
    • Chicken, turkey (limit fried and skin)

Cooking Oil

  • Extra Virgin Olive Oil – 2 tbsp per day

Foods to Limit

  • Saturated fats
  • Butter
  • Cheese
  • Fast/fried food (less than a serving per week)

In summary, load up on veggies, get plenty of berries, snack on nuts (but don’t overdo it), focus on whole grains, cook with olive oil (not vegetable oil), eat fish once per week, try to incorporate some vegetarian type meals with beans and/or legumes, and don’t fret if you miss something here or there you are still reaping tons of healthy benefits. It is important to remember consistency looks at the long haul, so if you don’t follow something exactly every day but overall, you are incorporating healthy habits, they still add up!

 

Additional Resources:

International Parkinson and Movement Disorder Society: MIND and Mediterranean diets associated with later onset of Parkinson’s disease

Parkinson’s News Today: MIND diet delays Parkinson’s onset, research shows

Vancouver Coastal Heather Research Institute: MIND diet associated with delayed onset of Parkinson’s disease

 

Parkinson’s – A Family Affair

When one person in a family is diagnosed with Parkinson’s Disease (PD), the diagnosis impacts the entire family. The Torrence family has been actively involved with the Peterson Foundation for Parkinson’s since 2017. Board member, Gail Torrence, is here with her daughters Sarah Rink and Katherine Fiorianti to share their story and the impact Parkinson’s has made on their family.

In 2013 Gail’s husband, Scott Torrence, began experiencing tremors in his left hand. After seeing many doctors and specialists, he was finally diagnosed with Parkinson’s in 2014. “I was familiar with the disease, as my mother was diagnosed in 2008. However, I did not understand the full extent of the symptoms and progression.” says Gail.

Upon learning more about the diagnosis and understanding the importance of community, Gail and Scott became regular members of the Franklin Support Group. Throughout the next few years, Scott and Gail became even more involved in the Foundation. Scott joined the Board of Directors in 2018 and Gail established the Peterson Painters in 2019. They supported the group by attending Petey’s Party and Golf Tournament – encouraging their friends to attend these events.

In November 2020 Scott passed away due to cancer but his legacy lives on.  “If you knew Scott, you know he was deeply committed to this Foundation throughout the last few years of his life. The Franklin Support Group grew with the commitment Scott made to promoting the Foundation to the Parkinson’s community and beyond in Middle Tennessee,” states Executive Director, Debbie Lowenthal.

Gail has taken over his seat on the Board of Directors, co-chairs the Franklin Support group and works with many of the small groups including the Peterson Crafters, Women with PD, and the Peterson Painters. Their eldest daughter, Sarah Rink, a registered dietitian has conducted several webinars on nutrition and health for individuals living with Parkinson’s. “Through my experience with Parkinson’s, I have been able to share information resources, support and understanding to others in my network including business owners, a church member and friends who have been diagnosed with or have a loved one living with Parkinson’s.” states Sarah.

Although living in Virginia, Katherine stays connected with the Foundation through her work on social media, marketing campaigns and promotional materials for the nonprofit. “It’s a way to stay connected to my dad. Even though I can’t be there for every meeting or event, I am still able to make an impact and I know he is proud of all three of us and our commitment to PFP.”

The Peterson Foundation for Parkinson’s understands not all individuals diagnosed with PD have the family support that Scott had when living with Parkinson’s. That is why the foundation continues to add support groups across Middle Tennessee for both individuals living with Parkinson’s and their care partners. Fore more information on how you can join a support group email brent@petersonforparkinsons.org.

 

 

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Enjoy the Holidays with Parkinson’s

For many, the holidays are a joyful time to gather with loved ones and friends, reflect on the past year and think about what’s to come. But for some with recently diagnosed or progressing Parkinson’s or with depression or anxiety, it can be a stressful or lonely time. Visiting with others can bring worry or increased symptoms, and not attending social events can bring feelings of isolation. These are natural and common reactions.

 

Continue medications as prescribed.

Traveling long distances or switching time zones can make medication dosing confusing, but most doctors recommend that you stay on the same schedule. For example, if medication is prescribed every three hours and you’re awake overnight (such as on a long flight), continue taking it every three hours.

Always consult with your personal doctor about your specific medication regimen.

Take an updated copy of your medication list and bring medications in their bottles in your carry-on when flying. A few weeks before leaving, check your medication supply. Notify your doctor and/or pharmacist if you need extra refills to cover the time you’re away.

Don’t forget to exercise.

Regular activity is sometimes the first thing to drop off a full schedule, but exercise can boost your mood and help your sleep. Even 30 minutes of walking per day is beneficial. If you are visiting family or friends, make it a group activity.

Keep your usual sleep schedule.

Going to bed and getting up around the same general times (within an hour or two) will help keep you in the same routine of exercising, eating and taking your medication. It’s okay to relax on vacation, but sticking close to your typical patterns will help you feel better in general.

Plan Ahead

When going out, always plan more time than you think necessary to get ready and get to your destination since holiday traffic and weather can be unpredictable. Give yourself a cushion to remove any pressure from potentially getting lost or running late that would otherwise create worry and worsen symptoms.

When leaving the house make sure you bring your Aware in Care Kit in case of emergencies.

Stick to a healthy diet.

An abundance of Christmas cookies, cocktail parties and family dinners make it easy to eat and drink in excess. Of course you should enjoy treats in moderation, but for people with Parkinson’s, a change in diet can have important effects. After big meals, especially protein-heavy ones, your medication may not work as well (meaning your symptoms may not be as well-controlled). You also may have constipation if you’re not following your usual eating habits. (Make sure you drink enough water and eat lots of fiber-filled fruits, vegetables and whole grains.) And remember that your balance may be more sensitive to the effects of alcohol.

Choose your social events thoughtfully.

You don’t have to go to every celebration, but there may be some events you can’t miss. Think about your stressors (an undisclosed diagnosis, family dynamics or difficulties communicating in crowds, for example) and set limits. Leave after one drink, pivot if certain topics arise in conversation, or commit to no more than two engagements each week.

But don’t avoid socializing altogether. In general, people who are more connected live happier, more fulfilled lives. And in Parkinson’s, talking with others may benefit cognition, and positive relationships can boost mood.

Much of this advice applies to daily life with Parkinson’s, but it’s key during busy times like the holidays. Pay attention to your feelings and needs so you can enjoy any time you celebrate with family and friends.

 

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10 Tips for Care Partners

Being a care partner for a loved one who has Parkinson’s Disease can be very stressful. It’s difficult to watch someone close to you suffer and you want to be able to do your best for them, but it’s important to remember that you also have to take care of yourself.

PFP has compiled a list of practical tips for care partners of individuals living with Parkinson’s Disease to make their lives easier and to help ease the stress.

  1. Be organized: Keep all of your loved one’s medical notes, insurance, records, appointments, telephone numbers of clinics and doctors, and medication details in a folder that can be easily accessed at any time. Take this folder with you to all appointments so you always have everything on hand.
  2. Take time for yourself: In order to be able to look after your loved one, you need to be physically and emotionally well. Take time off–it’s important to unwind and de-stress. Make sure you have time to relax. If necessary, enlist the help of other family members or even hire someone to assist you in providing care. Continue to meet with friends, participate in hobbies or groups, and maintain a schedule as normal as possible. You will not only feel more energized, but you will also be less likely to feel resentful.
  3. Understand the medical insurance: Make sure you fully understand your loved one’s medical insurance policy — what it does and doesn’t cover and how to apply for reimbursements of medical costs.
  4. Join a support group: By joining a support group, you will be able to ask advice and share your experience with others who are going through the same thing. You are there to listen to and support your loved one, but you also need a support person. Understanding that you are not alone and that someone else is in a similar situation helps you to feel nurtured. Learn more about PFP’s Care Partners Support Group
  5. Educate yourself about Parkinson’s Disease: Keep up to date with all the latest news about the condition, read up about symptoms and talk to your loved one’s doctor about what to expect with the progression of the disease. That way you’ll understand what changes to expect in your loved one’s behavior or symptoms and how you can best help when those changes occur.
  6. Expect changes in the relationship: Mood swings and depression are common in Parkinson’s disease and your loved one may even become resentful. It’s difficult to deal with these changes in the relationship, so open and honest communication is critical. You will both need time to adjust to your new roles in the relationship.
  7. Observe symptoms and report any changes: By caring for your partner on a daily basis, you will probably be the first person to notice any changes in behavior or worsening of symptoms. Report these to your loved one’s doctors as they occur so they can be addressed as soon as possible.
  8. Encourage independence: Try not to do too much for your loved one, they will want to hold onto their independence for as long as possible. Ask if they need help and respect their answer. Don’t try to do everything for your loved one. Allow them the time to complete daily activities on their own, such as dressing.
  9. Know your rights: Familiarize yourself with both care partners’ rights and disability rights. Find out if you are entitled to any disability or care partner’s benefits.
  10. Talk about the future: Although this is a difficult topic to broach, it’s important that you understand what your loved one wants further down the line. You need to discuss wills, treatment options and end-of-life decisions.
Eating Right with Parkinson’s: Nutrition Month Tips

Eating Right with Parkinson’s: Nutrition Month Tips

Valentine’s Day and Parkinson’s: Nurturing Relationships

Valentine’s Day and Parkinson’s: Nurturing Relationships

New Year, New Strategies: Setting Goals for Living Well with Parkinson’s in 2025

New Year, New Strategies: Setting Goals for Living Well with Parkinson’s in 2025

The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

The Peterson Foundation for Parkinson’s Announces Leadership Transition: Debbie Lowenthal Retires, Amy Breedlove Steps Into Role

Shaping the Future of the Peterson Foundation for Parkinson’s

Shaping the Future of the Peterson Foundation for Parkinson’s

Caring for the Caregiver: Recognizing and Addressing Burnout in Parkinson’s Care Partners

Caring for the Caregiver: Recognizing and Addressing Burnout in Parkinson’s Care Partners

2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

2024 Navigating the Parkinson’s Path:  Insights and Information on Improved Living

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Understanding and Managing Cognitive Health in Parkinson’s Disease

Unleashing the Power of Pickleball for those with Parkinson’s

Unleashing the Power of Pickleball for those with Parkinson’s

Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Unveiling the Comprehensive Nature of Parkinson’s Disease: Exploring Motor and Non-Motor Impairments

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Parkinson’s Disease and Vision: Navigating Common Visual Problems

Empowering Minds

Empowering Minds

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

The Power of Strength Training for Parkinson’s Disease: Enhancing Health and Well-being

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

2023 Navigating the Parkinson’s Path Expo: Insights and Information for Improved Living

Women with Parkinson’s Support Group

Women with Parkinson’s Support Group

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

Nutritional Superstars for Parkinson’s: The Best Fruits and Veggies

The MIND Diet for Parkinson’s

The MIND Diet for Parkinson’s

Parkinson’s – A Family Affair

Parkinson’s – A Family Affair

Enjoy the Holidays with Parkinson’s

Enjoy the Holidays with Parkinson’s

10 Tips for Care Partners